Výstupy z registru ČNHP za rok 2019: von Willebrandova choroba

Výstupy z registru ČNHP za rok 2019 – von Willebrandova choroba
The status of care for persons with von Willebrand disease registered within CNHP registry Annual Report 2019
The status of care for persons with von Willebrand disease registered within CNHP registry Annual Report 2019		 Persons with Von Willebrand disease
Persons with Von Willebrand disease		 Sample size
Sample size		 Number of patients in participating centres
Number of patients in participating centres		 Type of Von Willebrand’s disease
Type of Von Willebrand’s disease		 Sex and current age of patients
Sex and current age of patients
Blood group
Blood group		 Factor levels
Factor levels		 Factor levels according to type of VWD, part 1
Factor levels according to type of VWD, part 1		 Factor levels according to type of VWD, part 2
Factor levels according to type of VWD, part 2		 Bleeding score1 according to sex and age
Bleeding score1 according to sex and age		 Bleeding score1 in adults according to type of disease
Bleeding score1 in adults according to type of disease
Concomitant diseases
Concomitant diseases		 Annual bleeding rate (ABR) and location of bleeds treated with factor concentrate
Annual bleeding rate (ABR) and location of bleeds treated with factor concentrate		 Consumption of VWF concentrates in year 2019
Consumption of VWF concentrates in year 2019		 Consumption of other drugs in year 2019
Consumption of other drugs in year 2019		 Patients on permanent prophylaxis in detail
Patients on permanent prophylaxis in detail