Výstupy z registru ČNHP za rok 2017: hemofilie

Výstupy z registru ČNHP za rok 2017 – hemofilie
The status of care for persons with haemophilia registered in the CNHP registry: Annual Report 2017
The status of care for persons with haemophilia registered in the CNHP registry: Annual Report 2017		 Sample size, valid records
Sample size, valid records		 Part A: Persons with haemophilia
Part A: Persons with haemophilia		 Centres participating in CNHP
Centres participating in CNHP		 Basic demographics
Basic demographics		 Persons with haemophilia and inhibitors in 2017
Persons with haemophilia and inhibitors in 2017
ABR and treatment regimen in patients with inhibitor
ABR and treatment regimen in patients with inhibitor		 ABR according to treatment regimen in PWH with inhibitor
ABR according to treatment regimen in PWH with inhibitor		 Part A1: Demographic characteristics – haemophilia A
Part A1: Demographic characteristics – haemophilia A		 Severity of haemophilia A
Severity of haemophilia A		 Age at diagnosis according to severity of haemophilia A
Age at diagnosis according to severity of haemophilia A		 Actual age according to severity of haemophilia A
Actual age according to severity of haemophilia A
Hepatitis (ever) experienced: paediatric patients, haemophilia A
Hepatitis (ever) experienced: paediatric patients, haemophilia A		 Hepatitis (ever) experienced: adult patients, haemophilia A
Hepatitis (ever) experienced: adult patients, haemophilia A		 HIV: all patients, haemophilia A
HIV: all patients, haemophilia A		 Part A2: Treatment outcomes and bleeding frequency – haemophilia A
Part A2: Treatment outcomes and bleeding frequency – haemophilia A		 Data from year 2017 – sample size: all patients, haemophilia A
Data from year 2017 – sample size: all patients, haemophilia A		 Frequency of bleeding requiring treatment in 2017: haemophilia A
Frequency of bleeding requiring treatment in 2017: haemophilia A
Location of bleeds in 2017: paediatric patients, haemophilia A
Location of bleeds in 2017: paediatric patients, haemophilia A		 Location of bleeds in 2017: adult patients, haemophilia A
Location of bleeds in 2017: adult patients, haemophilia A		 Preventive administration in 2017: paediatric patients, haemophilia A
Preventive administration in 2017: paediatric patients, haemophilia A		 Preventive administration in 2017: adult patients, haemophilia A
Preventive administration in 2017: adult patients, haemophilia A		 Part A3: ABR according to treatment regimen – haemophilia A without inhibitor
Part A3: ABR according to treatment regimen – haemophilia A without inhibitor		 Annual bleeding rate according to treatment regimen: paediatric patients, haemophilia A
Annual bleeding rate according to treatment regimen: paediatric patients, haemophilia A
Joint and other bleeds according to treatment regimen: paediatric patients, haemophilia A
Joint and other bleeds according to treatment regimen: paediatric patients, haemophilia A		 Annual bleeding rate according to treatment regimen: adult patients, haemophilia A
Annual bleeding rate according to treatment regimen: adult patients, haemophilia A		 Joint and other bleeds according to treatment regimen: adult patients, haemophilia A
Joint and other bleeds according to treatment regimen: adult patients, haemophilia A		 ABR according to treatment regimen and age: adult patients, haemophilia A
ABR according to treatment regimen and age: adult patients, haemophilia A		 Joint and other bleeds according to treatment regimen and age: adult patients, haemophilia A
Joint and other bleeds according to treatment regimen and age: adult patients, haemophilia A		 Part A4: ABR according to centres – haemophilia A (PWHA)
Part A4: ABR according to centres – haemophilia A (PWHA)
Annual bleeding rate on permanent prophylaxis: PWHA on prophylaxis, paediatric centres
Annual bleeding rate on permanent prophylaxis: PWHA on prophylaxis, paediatric centres		 Annual bleeding rate on permanent prophylaxis: PWHA on prophylaxis, adult centres
Annual bleeding rate on permanent prophylaxis: PWHA on prophylaxis, adult centres		 Annual bleeding rate regardless prophylaxis: PWHA, paediatric centres
Annual bleeding rate regardless prophylaxis: PWHA, paediatric centres		 Annual bleeding rate regardless prophylaxis: PWHA, adult centres
Annual bleeding rate regardless prophylaxis: PWHA, adult centres		 Prophylactic regimens and treatment outcomes: PWHA, paediatric centres
Prophylactic regimens and treatment outcomes: PWHA, paediatric centres		 Prophylactic regimens and treatment outcomes: PWHA, adult centres
Prophylactic regimens and treatment outcomes: PWHA, adult centres
Type of treatment (subgroup of treated patients): paediatric patients, haemophilia A
Type of treatment (subgroup of treated patients): paediatric patients, haemophilia A		 Type of treatment (subgroup of treated patients): adult patients, haemophilia A
Type of treatment (subgroup of treated patients): adult patients, haemophilia A		 Part B1: Demographic characteristics – haemophilia B
Part B1: Demographic characteristics – haemophilia B		 Severity of haemophilia B
Severity of haemophilia B		 Age at diagnosis according to severity of haemophilia B
Age at diagnosis according to severity of haemophilia B		 Actual age according to severity of haemophilia B
Actual age according to severity of haemophilia B
Hepatitis (ever) experienced: paediatric patients, haemophilia B
Hepatitis (ever) experienced: paediatric patients, haemophilia B		 Hepatitis (ever) experienced: adult patients, haemophilia B
Hepatitis (ever) experienced: adult patients, haemophilia B		 HIV: all patients, haemophilia B
HIV: all patients, haemophilia B		 Part B2: Treatment outcomes and bleeding frequency – haemophilia B
Part B2: Treatment outcomes and bleeding frequency – haemophilia B		 Data from year 2017 – sample size: all patients, haemophilia B
Data from year 2017 – sample size: all patients, haemophilia B		 Frequency of bleeding requiring treatment in 2017: haemophilia B
Frequency of bleeding requiring treatment in 2017: haemophilia B
Location of bleeds in 2017: paediatric patients, haemophilia B
Location of bleeds in 2017: paediatric patients, haemophilia B		 Location of bleeds in 2017: adult patients, haemophilia B
Location of bleeds in 2017: adult patients, haemophilia B		 Preventive administration in 2017: paediatric patients, haemophilia B
Preventive administration in 2017: paediatric patients, haemophilia B		 Preventive administration in 2017: adult patients, haemophilia B
Preventive administration in 2017: adult patients, haemophilia B		 Part B3: ABR according to treatment regimen – haemophilia B without inhibitor
Part B3: ABR according to treatment regimen – haemophilia B without inhibitor		 Annual bleeding rate according to treatment regimen: paediatric patients, haemophilia B
Annual bleeding rate according to treatment regimen: paediatric patients, haemophilia B
Joint and other bleeds according to treatment regimen: paediatric patients, haemophilia B
Joint and other bleeds according to treatment regimen: paediatric patients, haemophilia B		 Annual bleeding rate according to treatment regimen: adult patients, haemophilia B
Annual bleeding rate according to treatment regimen: adult patients, haemophilia B		 Joint and other bleeds according to treatment regimen: adult patients, haemophilia B
Joint and other bleeds according to treatment regimen: adult patients, haemophilia B		 Part B4: ABR according to centres – haemophilia B (PWHB)
Part B4: ABR according to centres – haemophilia B (PWHB)		 Annual bleeding rate on permanent prophylaxis: PWHB on prophylaxis, paediatric centres
Annual bleeding rate on permanent prophylaxis: PWHB on prophylaxis, paediatric centres		 Annual bleeding rate on permanent prophylaxis: PWHB on prophylaxis, adult centres
Annual bleeding rate on permanent prophylaxis: PWHB on prophylaxis, adult centres
Annual bleeding rate regardless prophylaxis: PWHB, paediatric centres
Annual bleeding rate regardless prophylaxis: PWHB, paediatric centres		 Annual bleeding rate regardless prophylaxis: PWHB, adult centres
Annual bleeding rate regardless prophylaxis: PWHB, adult centres		 Prophylactic regimens and treatment outcomes: PWHB, paediatric centres
Prophylactic regimens and treatment outcomes: PWHB, paediatric centres		 Prophylactic regimens and treatment outcomes: PWHB, adult centres
Prophylactic regimens and treatment outcomes: PWHB, adult centres		 Type of treatment (subgroup of treated patients): paediatric patients, haemophilia B
Type of treatment (subgroup of treated patients): paediatric patients, haemophilia B		 Type of treatment (subgroup of treated patients): adult patients, haemophilia B
Type of treatment (subgroup of treated patients): adult patients, haemophilia B
Part C1: Treatment data and factor consumption – haemophilia A and B
Part C1: Treatment data and factor consumption – haemophilia A and B		 Treatment: all patients
Treatment: all patients		 Treatment: paediatric patients
Treatment: paediatric patients		 Treatment: adult patients
Treatment: adult patients		 Comparison of treatment in years 2017 and 2016: all patients
Comparison of treatment in years 2017 and 2016: all patients		 Comparison of treatment in years 2017 and 2016: paediatric patients
Comparison of treatment in years 2017 and 2016: paediatric patients
Comparison of treatment in years 2017 and 2016: adult patients
Comparison of treatment in years 2017 and 2016: adult patients		 Consumption of drugs: all patients
Consumption of drugs: all patients		 Consumption of drugs: paediatric patients
Consumption of drugs: paediatric patients		 Consumption of drugs: adult patients
Consumption of drugs: adult patients