Výstupy z registru ČNHP za rok 2016: von Willebrandova choroba

Výstupy z registru ČNHP za rok 2016 – von Willebrandova choroba
The status of care for persons with von Willebrand disease registered in the CNHP registry: Annual Report 2016
The status of care for persons with von Willebrand disease registered in the CNHP registry: Annual Report 2016		 Persons with von Willebrand disease
Persons with von Willebrand disease		 Sample size
Sample size		 Number of patients in participating centres
Number of patients in participating centres		 Type of von Willebrand’s disease
Type of von Willebrand’s disease		 Sex and current age of patients
Sex and current age of patients
Blood group
Blood group		 Factor levels
Factor levels		 Factor levels according to type of VWD, part 1
Factor levels according to type of VWD, part 1		 Factor levels according to type of VWD, part 2
Factor levels according to type of VWD, part 2		 Bleeding score according to sex and age
Bleeding score according to sex and age		 Bleeding score in adults according to type of disease
Bleeding score in adults according to type of disease
Concomitant diseases
Concomitant diseases		 Annual bleeding rate (ABR) and location of bleeds
Annual bleeding rate (ABR) and location of bleeds		 Consumption of drugs in year 2016
Consumption of drugs in year 2016		 Patients on permanent prophylaxis in detail
Patients on permanent prophylaxis in detail