Výstupy z registru ČNHP za rok 2015

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• Výstupy z registru ČNHP za rok 2015 / CNHP registry - 2015 annual report:
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Výstupy z registru ČNHP za rok 2015
Czech National Haemophilia Programme (CNHP): 2015 Annual Report - Introduction	Sample size, valid records	Part A: Persons with haemophilia	Sample size	Participating centres in CNHP	Part A1: Demographic characteristics of persons with haemophilia
Age	Type and severity of haemophilia in all patients	Type and severity of haemophilia in all patients: haemophilia A, haemophilia B	Type and severity of haemophilia in paediatric patients	Type and severity of haemophilia in paediatric patients: haemophilia A, haemophilia B	Type and severity of haemophilia in adults
Type and severity of haemophilia in adults: haemophilia A, haemophilia B	Age at diagnosis according to type and severity of haemophilia: all patients	Current age according to type and severity of haemophilia: all patients	Age at diagnosis according to type and severity of haemophilia: paediatric patients	Current age according to type and severity of haemophilia: paediatric patients	Age at diagnosis according to type and severity of haemophilia: adults
Current age according to type and severity of haemophilia: adults	Hepatitis: all patients	Hepatitis: paediatric patients	Hepatitis: adults	HIV: all patients	Part A2: Persons with haemophilia with inhibitor
Persons with haemophilia with inhibitors in year 2015: all patients	Persons with inhibitor: detail	Part A3: Treatment outcomes including bleeding frequency in persons with haemophilia, 2015 data	Data from year 2015 - sample size	Bleeding frequency in 2015: all patients	Bleeding frequency in 2015: paediatric patients
Bleeding frequency in 2015: adults	Location of bleeds in 2015: all patients	Location of bleeds in 2015: paediatric patients	Location of bleeds in 2015: adults	Preventive administration in 2015: all patients	Preventive administration in 2015: paediatric patients
Preventive administration in 2015: adults	Part A4: Treatment data and factor consumption, 2015 data	Treatment: all patients	Treatment: paediatric patients	Treatment: adults	Comparison of treatment in years 2014 and 2015: all patients
Comparison of treatment in years 2014 and 2015: paediatric patients	Type of treatment: all patients	Type of treatment: paediatric patients	Type of treatment: adults	Part A5: ABR in 2015 according to treatment regimen: haemophilia A + haemophilia B	Annual bleeding rate according to treatment regimen: all patients
Joint and other bleeds according to treatment regimen: all patients	Annual bleeding rate according to treatment regimen: paediatric patients	Joint and other bleeds according to treatment regimen: paediatric patients	Annual bleeding rate according to treatment regimen: adults	Joint and other bleeds according to treatment regimen: adults	Part A6: ABR in 2015 according to treatment regimen: haemophilia A only
Annual bleeding rate according to treatment regimen: all patients with haemophilia A	Joint and other bleeds according to treatment regimen: all patients with haemophilia A	Annual bleeding rate according to treatment regimen: paediatric patients with haemophilia A	Joint and other bleeds according to treatment regimen: paediatric patients with haemophilia A	Annual bleeding rate according to treatment regimen: adults with haemophilia A	Joint and other bleeds according to treatment regimen: adults with haemophilia A
ABR according to treatment regimen and age: adults with haemophilia A	Joint and other bleeds according to treatment regimen and age: adults with haemophilia A	Part A7: ABR in 2015 according to treatment regimen: haemophilia B only	Annual bleeding rate according to treatment regimen: all patients with haemophilia B	Joint and other bleeds according to treatment regimen: all patients with haemophilia B	Annual bleeding rate according to treatment regimen: paediatric patients with haemophilia B
Joint and other bleeds according to treatment regimen: paediatric patients with haemophilia B	Annual bleeding rate according to treatment regimen: adults with haemophilia B	Joint and other bleeds according to treatment regimen: adults with haemophilia B	Part A8: ABR in 2015 according to centres	Annual bleeding rate on permanent prophylaxis in paediatric centres	Annual bleeding rate on permanent prophylaxis in adult centres
Annual bleeding rate regardless of prophylaxis in paediatric centres	Annual bleeding rate regardless of prophylaxis in adult centres	Prophylactic regimens and treatment outcomes in paediatric centres	Prophylactic regimens and treatment outcomes in adult centres	Part A9: Consumption of factor concentrates in 2015	Consumption of factors: all patients
Consumption of factors: paediatric patients	Consumption of factors: adults	Consumption of factors: summary	Consumption of factors: severe haemophilia (regardless of inhibitors)	Part B: Persons with von Willebrand’s disease	Sample size
Number of patients in participating centres	Type of von Willebrand’s disease	Sex and current age of patients	Blood group	Factor levels	Factor levels according to type of VWD I.
Factor levels according to type of VWD II.	Bleeding score according to sex	Bleeding score according to type of disease	Other diseases	Consumption of factors in year 2015	Patients on prophylaxis in detail