Výstupy z registru ČNHP za rok 2014

Stáhněte si

Stručná prezentace ve formě PDF souboru:

• Výstupy z registru ČNHP za rok 2014 / CNHP registry - 2014 annual report ( PDF soubor, 2.3 MB)

Prohlédněte si on-line

Přehledné výsledky, v potřebných případech doplněné komentáři (po kliknutí na příslušný obrázek):

Výstupy z registru ČNHP za rok 2014
Czech National Haemophilia Programme (CNHP): 2014 Annual Report - Introduction	Sample size, valid records	Part A: Persons with haemophilia	Sample size	Participating centres in CNHP	Part A1: Demographic characteristics of persons with haemophilia
Age	Type and severity of haemophilia in all patients	Type and severity of haemophilia in all patients: haemophilia A, haemophilia B	Type and severity of haemophilia in paediatric patients	Type and severity of haemophilia in paediatric patients: haemophilia A, haemophilia B	Type and severity of haemophilia in adults
Type and severity of haemophilia in adults: haemophilia A, haemophilia B	Age at diagnosis according to type and severity of haemophilia: all patients	Current age according to type and severity of haemophilia: all patients	Age at diagnosis according to type and severity of haemophilia: paediatric patients	Current age according to type and severity of haemophilia: paediatric patients	Age at diagnosis according to type and severity of haemophilia: adults
Current age according to type and severity of haemophilia: adults	Hepatitis: all patients	Hepatitis: paediatric patients	Hepatitis: adults	HIV: all patients	Part A2: Persons with haemophilia with inhibitor
Persons with haemophilia with inhibitors in year 2014: all patients	Persons with inhibitor: detail	Part A3: Treatment outcomes including bleeding frequency in persons with haemophilia 2014 data	Data from year 2014 - sample size	Bleeding frequency in 2014: all patients	Bleeding frequency in 2014: paediatric patients
Bleeding frequency in 2014: adults	Location of bleeds in 2014: all patients	Location of bleeds in 2014: paediatric patients	Location of bleeds in 2014: adults	Preventive administration in 2014: all patients	Preventive administration in 2014: paediatric patients
Preventive administration in 2014: adults	Part A4: Treatment data and factor consumption 2014 data	Treatment: all patients	Treatment: paediatric patients	Treatment: adults	Comparison of treatment in years 2013 and 2014
PWHs switched between recombinant and pd concentrates	Type of treatment	Annual bleeding rate according to treatment regimen: all patients	Joint and other bleeds according to treatment regimen: all patients	Annual bleeding rate according to treatment regimen: paediatric patients	Joint and other bleeds according to treatment regimen: paediatric patients
Annual bleeding rate according to treatment regimen: adults	Joint and other bleeds according to treatment regimen: adults	Annual bleeding rate on permanent prophylaxis in respective centres	Annual bleeding rate on permanent prophylaxis in paediatric centres	Annual bleeding rate on permanent prophylaxis in adult centres	Annual bleeding rate regardless prophylaxis in paediatric centres
Annual bleeding rate regardless prophylaxis in adult centres	Prophylactic regimens and treatment outcomes in paediatric centres	Prophylactic regimens and treatment outcomes in adult centres	Consumption of factors: all patients	Consumption of factors: paediatric patients	Consumption of factors: adults
Part B: Persons with von Willebrand’s disease	Sample size	Number of patients in participating centres	Type of von Willebrand’s disease	Sex and current age of patients	Blood group
Factor levels	Factor levels according to type of VWD disease I.	Factor levels according to type of VWD disease II.	Bleeding score according to sex	Bleeding score according to type of disease	Other diseases
Consumption of factors in year 2014