Výstupy z registru ČNHP za rok 2013

Stáhněte si

Stručná prezentace ve formě PDF souboru:

• Výstupy z registru ČNHP za rok 2013 / CNHP registry - 2013 annual report ( PDF soubor, 4.2 MB)

Prohlédněte si on-line

Přehledné výsledky, v potřebných případech doplněné komentáři (po kliknutí na příslušný obrázek):

Výstupy z registru ČNHP za rok 2013
Czech National Haemophilia Programme (CNHP): 2013 Annual Report - Introduction	Sample size, valid records	Part A: Persons with haemophilia	Sample size	Participating centres in CNHP	Age
Type and severity of haemophilia in all patients	Type and severity of haemophilia in all patients: haemophilia A, haemophilia B	Type and severity of haemophilia in paediatric patients	Type and severity of haemophilia in paediatric patients: haemophilia A, haemophilia B	Type and severity of haemophilia in adults	Type and severity of haemophilia in adults: haemophilia A, haemophilia B
Age at diagnosis according to type and severity of haemophilia: all patients	Current age according to type and severity of haemophilia: all patients	Age at diagnosis according to type and severity of haemophilia: paediatric patients	Current age according to type and severity of haemophilia: paediatric patients	Age at diagnosis according to type and severity of haemophilia: adults	Current age according to type and severity of haemophilia: adults
Hepatitis: all patients	Hepatitis: paediatric patients	Hepatitis: adults	HIV: all patients	Data from year 2013 – sample size	Basic information on haemophilia patients with inhibitor
Bleeding frequency in 2013: all patients	Bleeding frequency in 2013: paediatric patients	Bleeding frequency in 2013: adults	Location of bleeds in 2013: all patients	Location of bleeds in 2013: paediatric patients	Location of bleeds in 2013: adults
Treatment: all patients	Treatment: paediatric patients	Treatment: adults	Comparison of treatment in years 2012 and 2013	Change of treatment in years 2012 and 2013	Type of treatment: all patients
Bleeding requiring treatment according to prophylaxis: all patients	Joint and other bleeds according to prophylaxis: all patients	Bleeding requiring treatment according to prophylaxis: paediatric patients	Joint and other bleeds according to prophylaxis: paediatric patients	Bleeding requiring treatment according to prophylaxis: adults	Joint and other bleeds according to prophylaxis: adults
Bleeding requiring treatment according to centres: all patients	Bleeding requiring treatment according to centres: paediatric patients	Bleeding requiring treatment according to centres: adults	Bleeding requiring treatment according to centres: paediatric patients	Bleeding requiring treatment according to centres: adults	Prophylaxis according to centres: paediatric patients
Prophylaxis according to centres: adults	Consumption of factors: all patients	Consumption of factors: paediatric patients	Consumption of factors: adults	Part B: Persons with von Willebrand's disease	Sample size
Number of patients in participating centres	Type of von Willebrand's disease	Sex and age of patients	Blood group	Factor levels	Factor levels according to type of VWD disease I.
Factor levels according to type of VWD disease II.	Bleeding score according to sex	Bleeding score according to type of disease	Other diseases	Consumption of factors in year 2013